In order to continually improve the quality of life for Latino children with cancer and their families, PADRES partakes in collaborative community-based, partnered research, geared toward the development of culturally-relevant educational programs for childhood cancer patients and survivors. PADRES has successfully partnered with notable academic and research institutions such as City of Hope, USC and UCLA. Research initiatives and commitment to finding new resources for childhood cancer patients continue to expand and provide HOPE to PADRES’ families.
PADRES Contra El Cáncer – Current Research Study
Cancer Survivorship: Telling a Story through the Eyes of “Esperanza” (Hope) Grant
Due to advancements in treatments for childhood cancers, children and adolescents are surviving well into adulthood. For some cancer survivors, the quality of that extended survival time is compromised due to late effects of cancer treatment. To successfully monitor and treat late effects that arise from previous cancer therapies, survivors require risk-based, survivor-focused care. Barriers to care for Latino survivors include cancer stigma and knowledge deficits regarding need for survivorship care. Through funding received from the National Cancer Institute at the National Institutes of Health, PADRES Contra El Cáncer and the Childhood Cancer Survivorship Program at UCLA’s Jonsson Comprehensive Cancer Center are working collaboratively to develop a culturally-tailored educational intervention, a photonovela, to decrease cancer stigma and improve knowledge on three key survivorship messages: need for a treatment summary, need for a survivorship care plan, and need for continuous health insurance coverage. The intervention will be tested for its acceptability and feasibility for delivery in the community setting. The expected outcome of this study is to develop a culturally-tailored educational intervention which can then be tested nationally in the Latino survivor community for its effectiveness to: decrease stigma and improve families’ survivorship care discussions; improve their knowledge about the importance of survivorship care planning for adolescent and young adult (AYA) survivors. The ultimate goal is to develop a new research paradigm in which a culturally-tailored, health communication intervention can serve as an effective health promotion method to improve rates of risk-based survivorship care for minority AYA childhood cancer survivors.
To find out more about PADRES’ research initiatives please contact:
Research Associate & Health Education Community Liaison